On Rare Disease Day (February 28th), I want to share my story
On Rare Disease Day (February 28th), I want to share my story—not only to raise awareness, but to celebrate the resilience of those living with rare diseases as we advocate for access, equity in medical research and disability resources, and work to tear down barriers that were never ours to carry. I live with Leber’s Congenital … Continue reading On Rare Disease Day (February 28th), I want to share my story
